Tye

Tye
Our Little Superhero

Wednesday, September 3, 2014

June 12, 2014 - Back to the hospital

Tye didn't get a fever after round 5 of chemo.  We thought we were going to be home until we left for San Francisco for his MIBG Radiation Therapy.  Well we were wrong.  3 days before we left Tye got a fever.  We took him to the ER at Primarys and they ran tests and sent us home on an antibiotic and said his counts were high enough that he would be able to fight the infection on his own.

Everything was fine until the next morning when we got a call from the hospital at 5 am saying that we needed to get to the hospital fast because his blood cultures were growing some sort of staff infection.  So back to the hospital we went.  After a couple of days of trying to find out what was wrong they found a blood infection in his central line and he was scheduled for surgery to have his line removed on Saturday June 14.

Roy was at the hospital with Tye that day and I was getting ready to head to the hospital when I realized that Max was not feeling well.  Since me and Roy were leaving on Sunday for San Francisco I decided to take him to the doctors office.  While at the doctors office we realized that his oxygen levels were in the 60's and they sent us to Primary's in an ambulance.  We could not get a hold of Roy because he was in the waiting room while Tye was in surgery.
Max at the Doctors office trying to get his oxygen levels up

Ambulance ride to the hospital
So at this point they got Max stable and admitted him to the third floor.  So we had Max on the third floor with pneumonia, Tye on the fourth floor with a bad blood infection and his line being removed and a flight to catch the next morning to San Francisco for Tye's radiation therapy.  That was a crazy night.  Grandpa stayed the night with Tye, Grandma stayed the night with Max, the rest of us had to get packed to go out of town and Tye's doctors were scrambling to get him stable to catch a flight to the hospital in San Francisco.  We ended up canceling our morning flight on Sunday to give Tye some extra time to get more antibiotics and flew standby later that night.  Abbie got us tickets and her friends at Delta got us on the flight and we were escorted to the flight by the pilot himself.  It all meant a lot to us.  We realized how many wonderful people there are in the world and how many people are so willing to help us.

We left Primary Children's hospital with Max still admitted and flew to San Francisco to check right back in to the hospital there.  That was for sure a stressful few days.  We wouldn't have been able to do it without friends and family coming to our rescue.  
  

May 21, 2014 - Chemo round 5

After surgery Tye had a few weeks to recover and then we were right back for another round of chemo.  This time the whole family was in Arizona for Ashlyn's high school graduation so Tye stayed with Grandma and Grandpa and they brought him to the hospital to start Chemo.
Ashlyn's Graduation in Arizona

The Gilbert Temple at night

Eli visiting Tye at the hospital!

Max visiting Tye at the hospital

Tye during chemo playing play-doh with Zoe

More Play-Doh fun

Trying to stay busy stuck in a hospital room.
Tye was in the hospital 5 days with this round of Chemo.  This was the first time he was threw up due to Chemo.  It seems like every round gets a little harder on his body.  Through it all he is still happy and content.  It takes it all one day a time.

We are so blessed that we were able to go out of town for a week and have family members and friends take such good care of Tye while we were gone.  He checked in the hospital on a Wednesday and we got home late Friday night.  He was happy to see his dad when he got to the hospital.

May 5, 2014 - Surgery

Tye had surgery to remove the tumor where the cancer started.  The tumor was located on his right side by his kidney.  He was in surgery for around 5 hours.  Surgery went well.  They were able to remove 99% of the tumor before they felt like they would be putting his kidney in danger.  After surgery Tye went to the ICU for 1 night.
Tye with dad right after surgery.

He was hooked to multiple monitors, an epidural for pain and a catheter.

Tye's happy place.

Feeling horrible but still smiling!

His giant incision.  Almost goes all the way across him.
Tye recovered like a champ and we were able to go home after 5 days in the hospital.  He would not walk for a while and could not sit up for weeks.  Overall he was still happy and wanted to play and keep up with his brothers.